Huntington's Disease
Care by AMG

At AMG Nursing and Care Services, we understand the unique challenges faced by individuals living with Huntington's disease. This progressive condition can significantly impact daily life, making tasks that were once routine increasingly difficult. From mobility issues and involuntary movements to cognitive and emotional changes, those affected by Huntington’s often require specialized, compassionate care to maintain their quality of life.

Our nurse-led domiciliary care service is tailored to meet the complex needs of each individual, providing support in the comfort of your own home. Whether it’s assistance with personal care, medication management, or emotional and mental health support, our experienced team is here to help. We are committed to empowering both individuals and their families, ensuring dignity, independence, and a sense of normalcy in the face of this challenging condition.

Huntington's Disease Care by AMG

What a Huntington's Disease package looks like at AMG Nursing & Care Services

Our Huntington’s disease care packages are designed to provide personalised, nurse-led support for individuals at every stage of the condition. Huntington’s disease presents unique challenges, such as changes in movement, cognition, and behaviour, and our care approach is tailored to manage these complexities. We offer assistance with daily tasks like mobility, personal care, and medication management, ensuring that your loved one’s needs are met in the comfort and familiarity of their own home.

Our dedicated team of nurses and carers are trained to understand the specific needs of those living with Huntington’s disease, and we work closely with families to create a care plan that promotes dignity, independence, and quality of life. In addition to physical care, we provide emotional and psychological support, helping to manage the mental health impacts of the disease for both the individual and their family. With AMG you can be confident that compassionate, professional care is always at hand.

Areas we can support

  • Discharge from a hospital or rehabilitation unit·

  • Collaborating with other professionals to set meaningful rehabilitation goals

  • Building confidence towards independence and integration with the local community

  • Assisting with daily activities, such as shopping, running errands, visiting friends and family and attending social events.

  • Helping you get to school, college or work

  • Respite care and extra support for your family.

  • Supporting independence

  • Tracheostomy, ventilators, suction or cough assist, PEG/RIG care.

  • Medication Administration

  • Personal care or incontinence care

  • Epilepsy management

  • Feeding help such as gastrostomy tube

  • Diabetes management

  • Bowel management

  • Challenging behaviour

  • Learning disabilities

What makes AMG exceptional?

The Training team

We have an industry leading training team that deliver our 4-day mandatory induction training, with our nurses providing bespoke 1 on 1 training for clinical interventions and competencies such as PEG. Our mandatory annual update training also ensures that all staff maintain compliance with the latest practices and standards, and ultimately improving outcomes for clients.

The Nursing Team

Our nursing team stands out for its expertise, compassion, and dedication to delivering exceptional care. Each member is highly trained and experienced in managing complex health needs, ensuring that every client receives personalized, attentive care. With a commitment to ongoing professional development, our nurses stay current with the latest best practices, allowing them to provide innovative and effective support.

Our Carers

What makes our carers stand out?
- Extensive recruitment and screening allows us to hire the best candidates
- All staff have Right to Work, background and DBS checks
- Industry leading mandatory classroom training
- Internal quality team which ensures the highest level of care is being delivered
- Competitive rates of pay and benefits to retain the best staff

How can I arrange care from AMG?

1. Get in touch with one of our Huntington's experts

You can get in touch with our team of experts by using the online enquiry form or by calling us on 01785 899400. We aim to respond to all enquiries the same day.

2. Free initial care assessment within 48 hours

Following your initial inquiry, our team of experts will gather more information about your needs and conduct a free assessment within 48 hours to better understand the care you require.

Considering all your needs and preferences, our experts will design a personalised care package.. The staff assigned to your care will be carefully selected to ensure they meet your specific requirements.

3. Your personalised care package

Testimonial

It gives me great pleasure to support your proposed to put forward "B" as carer of the year. In the time that "B" has been my husband’s carer, "P" who suffers from MND, "B" has gone above and beyond what you would expect, as she shows care and compassion for both of us.

"B" has enabled "P" to attend his grandsons sports day which otherwise he would have missed and these memories not made.

"B" encourages and facilitates "P" to follow is hobbies and interests. In her own time "B" has investigated accessible places to visit. He looks forward to his weekly trips out-these have enriched Philips life.

"B" is the “calm in a storm”, on more than one occasion her ability to problem solve and take control of a situation has been exemplary.

FAQs

I want a care team that can not only deliver care but truly understand what I am going through.

At AMG we discuss with you the type of carer required and use our experience to identify and select a care team suited to both your physical and emotional needs.

I don’t want strangers in my home.

We arrange a meet and greet and allow you and your family to be part of the recruitment process.

Do the carers receive training on Motor Neurone Disease?

We work in collaboration with MND professionals and will arrange training for all care teams, which is managed by our specialist Registered Nurses.

Can you support my family?

Through our extensive experience of past care packages, a whole family approach is advisable and is discussed throughout assessment and care delivery. We consider the impact of the condition for the whole household and support as needed.

I don’t wish to be defined by my diagnosis

Your team of carers will work with you to take one day at a time to allow trust and respect to flourish. This enables your team to thoroughly understand your needs and assist with making memories, adjusting support as required.

I don’t want to die at home.

We will work with you and other professionals to ensure that advanced care planning can be put in place. This can cover topics such as artificial feeding, ventilation and a choice of place to be cared for. We will offer reassurance that you can change your mind at any point as the MND journey can have variable paths that may be followed for a little while and then require a change of direction.

Get in contact

Want to speak to an expert or make a referral?

Please fill out the below form and someone will get back to you as soon as possible. We aim to respond to all enquiries within 24 hours.